Posts Tagged online work
Once again I seem at a loss for words. I keep wanting to get my dreamer out…but I am afraid to since I really do not know what to expect. That’s one thing that is turning out to be an essential element in life…dreaming. It’s what is missing with Chris – he has no dreams, no aspirations right now. And since I have no idea when or where or even if everything thing will ever be normal again I really am limited in what I can dream.
Oh there are lots of things going on; good things too. I cannot and would not deny those things. I have had many opportunities especially lately. And I guess if I concentrate real hard I can come up with some dreams inside those boundaries. I have had the opportunity of teaching via skype in Pakistan and now teach in an English school where I have mostly Russian and Brazillian students. Who would have guessed those opportunities would ever occur? I also get to join in services with my friends in Indiana on Sundays – that’s a real blessing…gotta love skype!!
But somehow there can be this major disconnect. My new norms are not normal to everyone else. And even the things we get to do are not done like anyone else. I guess this hits home on days like yesterday. Everyone else jumped in their vehicles and ran to my sister’s house. I planned on going but watched the weather closely. There’s no way I can stand out in rain or cold with Chris and try to get him in the car safely. I did finally get a break in the rain and we headed out. For most rain is not really a difficulty…you just move a little faster going in or coming out of the house. It’s not like that with Chris he moves slowly all the time! And even though he is getting easier and easier to transport – it is such a challenge just to go somewhere.
It’s kind of like I have this choice. I know no one can come and rescue me or make anything better…so I have to decide am I gonna have a pity party and just sit here? or am I going to suck it up and make a difference? I just have to not think about it – just get up and follow Nike’s advice – just do it!
Getting ready to go somewhere is like holding your breath on a thrilling ride at an amusement park. I have to just suck it up and do all it takes. I cannot think about anything – just get it all together and get out the door. Once I do – it’s not usually as bad as I thought. Of course some of this is because I have gotten stronger over the last 18 months and also learned a new way to get Chris out of the car when he doesn’t budge! – that happens mostly when we get home and there is literally no one here to help. Chris is worn out from the trip and offers no assistance!
I guess I kind of figured this out in my finances too. I heard a quote once that said tears will get you sympathy but sweat will bring you success. When I heard that I was even more determined to roll up my sleeves and figure out how to work. God has certainly ordered my steps and right now I’m not doing too badly. My lights are on, food on the table and the rent is paid! Why complain? Once I sucked it up and got busy working and finding work to do online – it all opened up.
My emotions are still all over the place. I have to wonder if they will ever level out. At times I can pretty much turn them off and just perform the tasks I have at hand for the day; but other times they try to get the best of me and drag me down. I cannot bear seeing Chris like this — knowing who he was and all he used to do. It’s like I get bogged down and I’m at a stand still. Grieving the loss – but can’t let go. When I crash like that it sets me to scrambling to find the off button. I like having them off more than on… it’s less distracting to my work! lol!
Don’t take me wrong – Chris is progressing and for that I am ever so thankful. He is going very fast for how far out he is.. and he’s doing more every single day. And I just hold my breath from day to day…sorting through emotions and thoughts and wondering what the next day will bring…sometimes what the next moment will bring.
It has been amazing to watch how God has supplied our needs through the last 3 years. I would have never dreamed of all the opportunities He has opened up. And I must say that I am curious as to how it will continue to unfold. I have so many ideas of things I want to do so that I am not just working for the other guys. (not that I mind!)
I know I am pretty much rambling… welcome to my head! lol! All in a nut shell I guess I’m trying to say that there comes a time in a tragic situation where you just have to suck it up and make the best of whatever you’ve got. But that never means you’ve given up hope. EAch day I face adverse circumstances and all sorts of trying choices that must be made on behalf of someone who cannot tell me what they want or need…so since he is still breathing and there is still life in his being.. I just keep hoping. Do I battle with thoughts that he will never come back? Yep – constantly. Do I believe that there is a chance Chris can come out of this…absolutely! But it’s not faithless to deal with what you see today.
So I will keep sucking it up – and pressing into one more day to see what it brings for us. Maybe one day – it will be very different. And maybe it won’t. But I will always have hope. Faith, hope and love….these three remain.
Well, almost anyway. It’s been a long day. It was a quiet day and I think that may have made it longer. I really don’t like listening to my own voice so much! I’m sure Chris doesn’t either! His first words will probably be “Will you please shut-up?” lol! He doesn’t seem to be too annoyed at me too much. And he’s getting pretty good at being able to show it…like this morning.
It was one of those times I let it get to me; well, we have a schedule to keep you know! But Chris decided he didn’t want to get up… and he literally pulled his arms in so I could not get his shirt on him! I got too frustrated because our schedule is really working so well and we were running just a little behind. I was flustered, especially when his stomach started growling! (Which is a really good sign of improvement!) So I finally tossed the controller on the bed and told him to call me when he was ready to get up! I came in the living room for a few minutes until I could quiet myself down. Then I felt bad for being upset…and glad because he made a choice! – but it was the wrong one! lol! We worked it out and he got up fine in a few minutes, guess he figured it was Sunday!
And there were other improvements along the way today as well… but you can check them out at the new blog I made for him. I am putting updates so many places I finally just started one blog and that’s where all the updates will be from now on! It is simple to find and read. Check it out at www.updatesonchrishampton.blogspot.com
I am working to make my life more productive and simpler at the same time. so far it’s working, at least I think it is! I worry that I am becoming more of a workaholic to give me something to do. But I don’t think I am. I have lots of work, but I am so breaking it up to give Chris the things he needs in a day too. We have a really good routine now – and I finally am nailing good bed time habits. It’s funny how much more you can do when you get organized, isn’t it?
It seems like there’s so much going on even though I am home all the time… I feel so stretched out inside.. you know? I have to work and care for Chris and remember to take care of me in there too.. somehow. Well, I shower, and I eat! Oh yeah – and I run! That oughta do it! I’m busy and have a full schedule but I can still feel so empty sometimes. I think doing the devotional for care givers has helped me a lot. I know I did it to help others but I have to get myself in line before I can write it! And that actually helps me get things in perspective each morning.
Speaking of caregivers…I was really sad this morning when I was in a support group for caregivers and found that all the things I deal with (extreme emotions, loneliness) is all too common…I was glad that we could understand each other…but sad that it happens every where. People can walk with you for a while, but when it goes on for years they bail. I tried to explain that it wasn’t because they don’t care but because they don’t know what to do with us…and over and over the church is mentioned…they really don’t know what to do with people who do not have the ability to come to their church. I’m still trying to remember why I spent all those years going…
One good thing that God is bringing out of the terrible situation is that I am getting to know Him without the filters of the church. We tend to see HIm through church shaped glasses…but He doesn’t really fit in them…And for that I am thankful. I wrote this in my journal this morning:
I still have this intense desire to be with God – to know Him – to know His ways
but now it’s coming out differently.
It’s not a pray-until-you-see-it or sing-until -He-comes kind of thing
it’s a day by day unfolding of His heart in my daily walk
when I don’t walk with Him – I dont’ see HIm
But when I position myself to see Him
He reveals Himself to me more and more
until my actions are determined by His
It sounds crazy that I would know Him more in a dungeon experience…in a sort of prison I would encounter His sweet presence.. but then if I have the facts straight His specialty is making beauty from ashes!
That’s what I do when I’m not real sure what to do. I am really enjoying blogging (I have three now) and I am looking at doing a couple more. Just as side notes and to generate a little extra cash. I am beginning to learn a little more about this huge information high-way that we call the Internet… you know the one thing we can no longer live without! Anyway, during these two plus years I’ve been doing a lot of exploring and I am just now kind of putting some of the pieces together. I am still kind of scared about jumping out there, I really don’t want to waste me time.
So sometimes I get another cup of coffee and stare at the computer screen…just thinking about possibilities and letting ideas (dumb ones too) run through my head. You never know when one of them may turn out to be a good one! That’s how I have spent most of today…just one more cup.
It’s been so hard to find work online and as it’s starting to come together at least a little bit – or at least make a little sense – or at least seem just a little bit possible – I just think…and take care of Chris. As he is waking up he is requiring more time and that’s really a blessing. It just means I have to be even more disciplined to get things done.
so basically, I can sit here and worry about how things might not turn out and get absolutely nothing done, or I can get in there, roll up my sleeves and give it a shot. And there I go again with my emotions…time for another cup of coffee…and more thinking!
Several things have come together for me over the last few weeks. For one, I relinquished all my dreams…I have no plans except to take care of Chris for the rest of my life. And in the process of letting go it gave me clearer possibilities from here. And I also just kinda got comfortable with me. Yeah, I’m 50 and I am just now okay with myself! How crazy is that? lol! I can’t really explain it and I won’t go into a lot of details about some recent happenings…but the end product is that I’m just cool with me. And the funny thing is…I don’t really care if anyone else is or not!
It’s taken over two years for things to start coming together. All the work type stuff and other things too. For instance after this week we will finally all be in one place for the first time since Bubba’s wreck. I had stuff here in Oklahoma, some in Louisiana and some in Chicago. This weekend I’ll get Chris’ stuff from Louisiana and we will finally be at a leveling off place…that’s how it feels anyway. I am pretty mixed emotionally on it. You know, when it all first happened I had the illusion that he’d get better and then we’d go back to our lives. I wanted to leave all his stuff just like he left it…but it has all changed…including my relinquished future views…time for another cup of coffee! lol!
It’s funny though that it’s all come together at this one point (where that is I can’t really say) and I am more secure in Him and trust God more even though I do not trust Him the same as I did before. Like, before I was trusting HIm to take care of the ones I love…I expected He would keep them physically safe from harm and He did not. I cannot trust Him in that way anymore – and at first thought He’d broken trust. Then I looked further though and saw that He protects the part of us that cannot die…our soul. The very core of our being is safe in Him So I trust Him on a much deeper level…I think I like it better. I am not presumptuous about what He is going to do or how He will do it…He really is God of my life…and I am at rest. Which only means one thing…time for another cup of coffee!
Care to join me?