Archive for January, 2016
Please forgive the rant – or hit the “back” button if you are prone to being offended! I’ve had my son at home and been his full-time caregiver now for over 6 years. I’ve had good aides, bad aides and aides that have become friends. I’ve had nurses that were punctual, knowledgeable, and genuinely cared for my son; and some who were just wanting a paycheck. We’ve had case managers from both ends of the spectrum as well.
I know I’m a little OCD and a Type A , high-strung, anxious person, but keeping appointments and being punctual are important ways for people to communicate worth. There was a post recently that made light of being punctual and said we shouldn’t be so stiff and everyone just needs to relax. There is not a fiber of my being that agrees with that viewpoint. First, let me say there are times when situations are totally out of a person’s control – a flat tire on the way to work, a kid who pukes all over you or your car, your car won’t start and a host of other emergencies that can come up to hinder a punctual arrival. But as a general rule, punctuality sends the message that the other participants are important and what is to be discussed is of value. I won’t even go into how much it costs a company monetarily when people are late and delay important meetings. So maybe I have a problem – but these things are important to me.
So… my son’s case manager usually schedules his appointment for the month ahead. I’ve finally stopped writing them down because every month she calls that day and reschedules it, usually more than once. That’s what happened this week. Last time she was here she scheduled an appointment with us for Monday. But when Monday came she was ill – and I do get that, so she rescheduled. I actually appreciate that since I try to protect Chris from being exposed to viruses and such. So she said she would come today – Wednesday. I’m like, cool.
I had wanted to take Chris to the grocery store this afternoon while the weather was sunny and nice, but decided we could opt for our normal schedule and I can go tomorrow instead. About half an hour before she was supposed to be here – she texts and told me her “other Norman” appointment had rescheduled – how does my Friday look? Just pissed me off.
Way to tell us we don’t matter.
Even though she probably does not intend us to feel this way, we were not worth the 12 mile drive from a neighboring town today. She doesn’t acknowledge that I changed up my schedule to accommodate her. I guess she doesn’t think about things like that. By ignoring the fact that we have things to do too – she says what is on my agenda is worthless and unimportant; but what is on her agenda is important.
How is what I do not important? First of all, much of my time is devoted to caring for my son. And I have just taken a full-time position with a company, plus have a few writing clients I provide content for. Plus, I have just started working on some of my own writing projects….but the fact that it is actually a juggling act to reschedule for her – is not important.
Maybe she does not understand all that it takes to take Chris out – but of course she is going to ask if I am working on re-socializing him and getting him out more. She may not understand how crammed full our schedule is and what it takes to puree his meals, feed him each and every bite, get him in the standing frame, do range of motion exercises, make sure he wears his splints…..etc. etc. etc. And of course figuring out how to work in between is a challenge. None of this is a complaint – just the way it is here. And her total disregard of our schedule and what we do in a day all has to be rearranged to coincide with her visit just gets to me after awhile. But if I choose to no longer accommodate – I’m the bad apple.
Please, if you work with others – on any level from providing home health services, to a professional level – value them. Our actions should always tell others that their position, thoughts, work, or whatever is just as important as yours. We should be communicating to others that they have value – and are worth out time.
Earlier this week I shared a post in my Devotions for Caregivers blog. I talked about how I got up and wanted God to speak to me quickly because I had a lot to do. But we don’t feel that way about other relationships. I mentioned how I don’t tell a doctor or nurse to hurry; I expect and appreciate them taking time to be thorough. But how many times do I act like this case manager when it comes to my communication with Him? How many mornings do I get up and think, I’ll study, pray or read later today, or tomorrow, or over the weekend?
While I think God is unlike me in that He patiently waits to be gracious to us (Isaiah 30:18). He longingly waits for us to take time to enter His presence, and when I schedule and reschedule – I am communicating to Him that time with Him is not worth my effort. So today – instead of spending my time fretting and being mad that the case manager doesn’t value my time – I’ll spend some time repenting for the times I have treated spending time in His presence with the same careless disregard. I’ll be purposefully making time to be with Him.
As for the case manager – I’d like to say that I won’t even bother to write her appointments down on my calendar anymore. But it’s not fair for me to expect God to just be sitting there for whenever I decide to show up- and be frustrated at her for something I do as well. If she comes Friday – I will mention my frustration and we will go from there.